PICC My Feeding Tube Down My Nose

I've been such a bad blogger lately. But to be fair, I haven't felt well enough to do it. Here's an update on the last few months.

In December I had my take-down surgery at LDS hospital for my j-pouch. Unfortunately, the doctor found that my intestines had been wrapping up in weird position while I had my ileostomy and I had a lot of damaged small instestine. Well he fixed that by cutting out 40 cm of my small intestine. I then spent a week in LDS hospital with a few scares of serious nausea but I eventually was able to eat enough for them to send me home.

Well just like my last surgery, things got worse at home. I started hurting when I at anything and had to go to the ER a few days after being home. Dr. Kim rushed down after one of his surgeries to see me cause my x-ray and CT scan looked so bad he thought I would need emergency surgery. But then when he saw me he said I didn't look as sick as my scan showed. He decided to hold off on surgery and just monitor me. That meant readmission.

I wasn't allowed to eat so they put in a PICC line. Man I hate PICC lines. It's so hard for them to place one in my arm (we always have to try a few times of poking my arm) and it's just the tube sticking out of your arm and it hurts and it's annoying. But the PICC line has preserved my life more than once so I just sucked it up and got it placed.

A few days later they placed my feeding tube. I was getting worried cause I wanted to be home for Christmas but that was looking less and less likely. Well luckily, on Christmas Eve I had some awesome nurses who pushed to get me released and my doctor is awesome and said that if I wanted to go home he wasn't going to make me stay, so at 9 PM on Christmas Eve my dad drove me to their house.

I felt horrible but I was with my family for Christmas and that's all I wanted. It was weird having home health care come over on Christmas Day to show me how to manage my feeding tube.

So I did the feeding tube from the end of December through mid-February. I was still having pain but it was getting a little better and once again, Dr. Kim was awesome and said that I could get the feeding tube out if I felt like I could eat enough to survive.

So now it's been a few months off the feeding tube and I can't gain any weight no matter what I eat and eating still hurts really badly. So we're starting the testing process again to find out what's wrong. Today I'm getting an endoscopy and then next week a CT Scan.

I sure hope that whatever is causing my pain isn't too serious and I don't have to have surgery cause we've decided my body just doesn't do surgery well. I'll let everyone know what happens when we find out more.

Thanks for everyone supporting us!!